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AMSTERDAM

25-28 SEP 2024

AMSTERDAM

25-28 SEPTEMBER 2024

BRIDGE
TO THE FUTURE

Patient organisations

Patient Organisation Area

The Patient Organisation Area at the 2024 EADV Congress gives you the opportunity to present your work both onsite in Amsterdam and virtually on the official digital platform.

The main aim of the Patient Organisation Area is to create a collaborative space for patient organisations and specialists in dermatology where they can interact and develop connections.

We warmly invite all the participants to the EADV Congress to visit this area to discover and learn about the role and importance of patient organisations and common interests.

Patient Organisation Area at the 2023 EADV Congress - Berlin

Courtesy of Bart Hess

Daily schedule

Wednesday 25 September

13:00 - 14:00

Allergienet

HS Connect

France Acne Ados Adultes

Društvo Atopijski dermatitis

GlobalSkin – International Alliance of Dermatology Patient Organizations

Vitiligo – Sri Lanka

14:00 - 15:00

Vereniging voor Ichthyosis Netwerken

IFPA

CMTC-OVM

Huid Nederland

france asso cancer et peau

Association d’aide des enfants atteints de Xeroderma Pigmentosum

15:00 - 16:00

Caring Matters Now

Hidradenitis Patiënten Vereniging

Global Allergy and Airways Patient Platform

DEBRA UK

European Federation of Allergy and Airways Diseases Patients’ Associations

Lichen Planus Nederland

16:00 - 17:00

Deutscher Psoriasis Bund e.V.

Passion People APS

Skin SriLanka

Nevus Netwerk Nederland

French Association of Nodular Prurigo

Thursday 26 September

09:00 - 11:00

Global Albinism Aliance

HS Connect

France Acne Ados Adultes

Društvo Atopijski dermatitis

Allergienet

Vitiligo – Sri Lanka

11:00 - 13:00

france asso cancer et peau

IFPA

Deutscher Psoriasis Bund e.V.

Passion People APS

Skin SriLanka

Association d’aide des enfants atteints de Xeroderma Pigmentosum

13:00 - 15:00

Global Allergy and Airways Patient Platform

DEBRA UK

Huid Nederland

Hidradenitis Patiënten Vereniging

GlobalSkin – International Alliance of Dermatology Patient Organizations

CMTC-OVM

15:00 - 17:00

Caring Matters Now

Vereniging voor Ichthyosis Netwerken

European Federation of Allergy and Airways Diseases Patients’ Associations

Nevus Netwerk Nederland

Lichen Planus Nederland

French Association of Nodular Prurigo

Friday 27 September

09:00 - 11:00

HS Connect

France Acne Ados Adultes

Društvo Atopijski dermatitis

Association d’aide des enfants atteints de Xeroderma Pigmentosum

Caring Matters Now

Passion People APS

11:00 - 13:00

Global Albinism Aliance

Global Allergy and Airways Patient Platform

DEBRA UK

Skin SriLanka

IFPA

European Federation of Allergy and Airways Diseases Patients’ Associations

13:00 - 15:00

Deutscher Psoriasis Bund e.V.

Hidradenitis Patiënten Vereniging

GlobalSkin – International Alliance of Dermatology Patient Organization

CMTC-OVM

Huid Nederland

Vereniging voor Ichthyosis Netwerken

15:00 - 17:00

Nevus Netwerk Nederland

Vitiligo – Sri Lanka

france asso cancer et peau

Allergienet

Lichen Planus Nederland

French Association of Nodular Prurigo

Saturday 28 September

09:00 - 10:00

Deutscher Psoriasis Bund e.V.

HS Connect

France Acne Ados Adultes

Društvo Atopijski dermatitis

Association d’aide des enfants atteints de Xeroderma Pigmentosum

Caring Matters Now

10:00 - 11:00

Global Albinism Aliance

IFPA

European Federation of Allergy and Airways Diseases Patients’ Associations

CMTC-OVM

GlobalSkin – International Alliance of Dermatology Patient Organizations

Vereniging voor Ichthyosis Netwerken

11:00 - 12:00

DEBRA UK

Hidradenitis Patiënten Vereniging

Nevus Netwerk Nederland

Huid Nederland

Passion People APS

Global Allergy and Airways Patient Platform

12:00 - 13:00

Skin SriLanka

france asso cancer et peau

Allergienet

Vitiligo – Sri Lanka

Lichen Planus Nederland

French Association of Nodular Prurigo

Registrations to participate at the Patient Organisation Area are now closed

Register your account on the EADV online portal by 30 June 2024. 
Once registered, you will have until 31 July 2024 to complete your Patient Organisation Online Profile.

REGISTER NOW

Participating Organisations

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HEALTHCARE PROFESSIONAL DEFINITION

Important note to Healthcare and Non-Healthcare Professionals

Access to the different areas and sessions of the Congress depends on the status. Please read the description below to ensure you/your delegates comply with the regulations in place.
EADV Members are not designated as Healthcare Professionals by default. Please attribute the correct status (HCP or Non-HCP) during registration.

Definition

A multidisciplinary audience will attend the EADV Congress, and the EADV will assign different classes to healthcare professionals (HCP) and non-Healthcare Professionals (non-HCP) to ensure compliance with these regulations.

Chapter 3 of the Dutch CGR code defines HCPs as follows:
“3.1 In the purpose of this Code of Conduct, the following terms shall bear the following meaning:
healthcare professionals: persons qualified to prescribe or supply prescription-only medicinal products.”

Further explanation is provided in The General information about organising scientific meetings and Frequently Asked Questions from the CGR (Dutch Foundation for the Code for Pharmaceutical Advertising (to be referred to as the general information document from here on out) (20170214 CGR informatie congresorganisaties), where it states (at section 2 a, page 2) that: “In the Netherlands the group of healthcare professionals comprises: physicians, physicians who are being trained to become a specialist (‘artsen in opleiding’), pharmacists, pharmacist’s assistants, obstetricians, dentists, physician assistants, nurse practitioners and specialised nurses.”

Dutch Nurses, in Particular

It further clarifies that:
… “Specialised nurses (limited to the lung, diabetes and oncology areas) only have independent prescription authority if they have completed a specific training programme for this purpose. The completion of this training is entered in the BIG register and so can be checked by anyone. This means that all of the other healthcare providers, such as regular nurses, dieticians, dental hygienists or supportive GP practitioners (‘praktijkondersteuners’), are not healthcare professionals and so – just like patients – belong to the ‘general public’. This group will be referred to below as ‘non-healthcare professionals’.”

In terms of specialised nurses, the explanatory notes to the CGR code (20200701 Explanatory Notes CGR per 20200701) provide a specific list to be taken into consideration:

3.1.d Definition of “healthcare professional”
…. pharmacist’s assistants and nurses with the additional BIG registrations:

Specialised nurses (gespecialiseerd verpleegkundigen):

  • Diabetes nurses
  • Pulmonary care nurses
  • Oncology nurses

Specialised nurses may only be considered as healthcare professionals if their BIG registration states that they have prescription authority. ….
Nurse specialists (NS) (verpleegkundig specialisten):

  • NS providing general healthcare
  • NS providing mental healthcare“

Residents

Lastly, the explanatory notes state (at page 3) that:
“Physicians in training to become a specialist (artsen in opleiding) are also considered as healthcare professionals within the meaning of the Code of Conduct. Medical students are not considered healthcare professional (see Newsletter 2006/4).”

Other Categories

The general information document (sections 2d and e, page 3) goes on to clarify that industry employees and specialised journalists can be exposed to promotional content. Yet patients, patient representatives, and regular press or specialised journalists who target the general public will still be considered non-HCPs and should not be exposed to promotional content.
STUDENTS are NOT considered as Healthcare Professionals under the current guidelines and will be automatically classified as NON-HEALTHCARE PROFESSIONALS.

Industry sessions

Satellite Symposia and Industry Hub Sessions presenting data on the development, research, or other issues related to prescription medicine is restricted to Healthcare Professionals and Industry Participants as indicated by the Industry Session Organizer. All promotional materials and marketing aids related to these industry sessions should be strictly limited to HCPs. Industry Session organisers can limit participation to certain representative groups independently from the EADV recommendations if deemed imperative to achieving the session’s intended purpose. The organising company reserves the right to refuse single categories, particularly if they are not adequately related to the session’s objective and purpose.

The industry session organiser is responsible for compliance with the session.